ISAWchat

Q14 If your baby is suspected of having IS, do not stop pushing for answers until you have an EEG read by an epileptologist and they can say without a doubt that the child does not have IS. Once diagnosed, get on FIRST LINE treatment.

Q10 There are some concerning potential side effects for both first-line treatments but these must be weight against the absolute urgency of controlling the spasms and saving your child from catastrophic brain damage.

It’s so important for the #infantile spasms community to come together and spread awareness worldwide during #ISAW2016! #ISAWchat

Echoing @RyansMom2 No one dealing with IS is alone! There is help! There is hope! #ISAW2016

Q13: With preventative clinical trials currently underway, what is your hope for future generations? #ISAW2016 #ISAWchat

Q12: Because early detection and treatment is so crucial, how can we raise awareness so that infants in the future get a quick diagnosis and treatment? #ISAW2016 #ISAWchat

Q11 Being a parent advocate often begins on a personal level and allows you to have the strength to share your story with others. #ISAW2016 #ISAWchat

Q10 Here's a helpful guide on the Vigabatrin-Associated Vision Field Loss http://www.tsallianc...

Q9. We encoruage everyone to visit isweek.org where there are all sorts of resources and support organizations for an array of seizure disorders

Q9 In terms of finding other parents, where can parents go to learn more about infantile spasms? What resources are available? #ISAW2016 #ISAWchat